This Update

is 100% free of new information on Charlie's Failure To Thrive.

We saw the Pediatric Gastroenterologist yesterday. The problem with taking Charlie to a doctor's appointment is that you then have Charlie at that doctor's appointment. It's like holding a meeting in the center ring of a circus.

Factor in that I wasn't really sure what I was supposed to be saying to him and that my sinuses were killing me. I have no idea what was actually accomplished. He has a brief overview of Charlie, got to see him in action and ordered some tests. We will see him again in two or three months, sooner if anything comes back on the tests.

Because he's an intinerant internist, he doesn't have privileges at the hospital or clinics here to order the tests himself. I took Charlie back to school, ran Melody's project to her school and dropped off a prescription before getting the paperwork to his pediatrician's office. They called back, naturally, while I was teaching today. We'll get them done Monday, it seems.

This doctor's objective is to rule out any internal reason he's not growing. Make sure his enzymes, absorbtion and output are all up to par. The gut feeling of the specialist and pediatrician is that this is one more side effect of his autism. He's so particular about his food and spends so much time on the move that he simply doesn't have any extra calories to grow with.

I'm not completely convinced--In the last year, he has gained only 4 oz. In the 5 weeks since he last saw his pediatrician, he has consumed 8-16 oz. of Pediasure a day. Even with a few hundred extra calories each day, he has not gained an ounce. Still, having spent Sunday not eating and Sunday night "fwow-uppy" ground may have been gained and then lost.


Deb said...

This is a mixed bag, isn't it? On one hand, you don't want them to find anything, because that's just more medical intervention. On the other hand, finding something might mean a good resolution. I don't know what to hope for, so I hope whatever the outcome, it helps Charlie. Hugs to all of you.

Kristin said...

Ok... I totally read that to say that he's been drinking eight 16oz (128 oz) every day!! I was like Wow!! How in the heck is he eating anything else?!?! Ok, so I'm a little tired. I get it now. Between 8 & 16 oz. Whew...

~Gretchen~ said...

Those hyphens leave so much open to interpretation, eh?